Like much of the rest of the country, Ginny and I were saddened by the passing of Harvey Korman this week. He was a brilliant comedy performer for one thing, of course, but also we felt badly for another reason.

Ginny has something called Ehlers-Danlos Syndrome. It is a rare, connective tissue disease which causes problems from benign to life-threatening in different people.

Because it is so rare, we’ve always said, half jokingly, that EDS needed a celebrity spokesmodel to bring attention and much needed research money. Enter Harvey Korman.

Mr. Korman’s son has EDS and a few years ago he got together with some of his Hollywood pals, including the legendary Carol Burnett, for an EDS fund raiser in Beverly Hills, the first celebrity ever to do so. There are heroes in the world. To us, Harvey Korman is one.

2 Responses

  1. Far Side of Fifty

    I am sorry to hear that Ginny has EDS. Having a rare disorder or syndrome is really hard, it is hard enough having it..then you have to explain all the time what it is and how you are physically dealing with it. No one knows about it, and few people will actually take the time to research it. Unless someone famous has it..public awareness is at a standstill.
    Now you have lost your spokesperson…that is sad.
    My husband has Trigeminal Neuralgia (TN)another rare disorder. No famous spokesperson yet. I blogged about it back in Feb (Trigeminal Neuralgia) and then again in April (Prescription Pains)..sometimes I get a bit carried away:)

  2. Terry Dullum

    Far Side… Thanks for you comments. Keep searching. We’ve found a lot of help through support groups etc. All the best to you and your hubby.

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